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A year can go so quickly.

I had my third child, Angus, in October last year. He was born with Down Syndrome, a shock when he was born as we had not done any of the testing. He also had heart issues and breathing difficulties. The first few days of his life was tough on us all, but after coming to terms with his initial diagnosis, we needed to get our heads around the more pressing issues of his heart and breathing problems. We encountered a world which was so foreign to me, the life of a ‘Hospital Mum.’ Dealing with a newborn in Neonates and maintaining a normal life was extremely difficult. I saw so many people trying to do the same thing as me and also remembering what life was like before this new hurdle.

After 68 days of Angus being in and out of hospital, he finally succumbed to a much calmer life than what he had been leading. He died on 30th December 2012.

Coming up to his anniversary I remember all that we went through as individuals and as a family and know that we are much stronger and have had our eyes opened up to what so many people have to deal with a sick child, a child with special needs and a family who has to keep it all together. We may not have Angus but we will always have our memories.

This Real Story is by AIVILO, 15/12/2013
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  • This article was written some time ago, but I’m sure the feelings are still so fresh and raw for this beautiful mum. With another anniversary just passed, I hope Aivilo was surrounded with love on that day.

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  • I am deeply touched by your story and the strength you and your family have shown throughout this challenging journey with Angus. It’s clear that he brought a unique and profound love into your lives, even if his time with you was shorter than you’d hoped. The experience of being a ‘Hospital Mum’ and navigating the complexities of caring for a child with special needs is something few can truly understand. Your resilience and ability to find strength in the face of such adversity are truly admirable. As you approach the anniversary of Angus’s passing, may you find comfort in the beautiful memories you shared and the enduring love that will always remain. Wishing you and your family continued strength and healing.

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  • That is so sad! But you gave such a great way of looking at it, he finally succumbed to a calmer life. So sad so beautiful

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  • So sorry to hear that! A really interesting article! Thanks so much for sharing this!

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  • oh my I just picked up on this story. I am so very sorry for your loss. I miscarried my first and that was hard enough, so I can only imagine what you and your family have gone through. Angus is now one of those glittering stars shining down and sending out beams to light your way. Sending special love and thoughts your way and air kisses to your beautiful angel.
    Love and Light cherz.

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  • so sorry to here that. i have had 3 prem babies all spent time in ICU and its really tough but i got to bring mine home so i cant imagine what you are going through xx

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  • Condolences to you and your family, do take good care.

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  • How very sad. My sister has also suffered a similar experience.

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  • love and hugs, so soo sorry for your loss

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  • I find I cant read posts about these things, even though I don’t know the people or child, I feel it so deeply and it upsets me

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  • such a sad story, I find it hard to read anything that involves the loss of an innocent angel

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  • I am so sorry for your loss

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  • This sis so sad, l am so sorry for your loss.

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  • So sorry for your loss. I’m sure he has done a lot to make ‘his’ family a much stronger unit and he will be love and remembered by anyone who met him.

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  • May your little one dance with angels, I am so sorry for your loss.

    Reply

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