There are so many different genetic disorders !
My youngest has Down syndrome which is a genetic disorder caused when abnormal cell division results in extra genetic material from chromosome 21.
I’m a member of Down Syndrome Queensland and of a T21 Mum Australian network group on facebook and another facebook support group.
As the others suggested – check facebook. Also try talking with the specialist as they will probably know of others in their field who may be able to link you up with someone. If, by chance you don’t find a facebook group you can start one. Maybe invite people to get in touch on the page
If you take your child to any specialist medical practitioners I suggest you ask them,
Some counsellors or occupational therapists at hospitals may have lists.
Try using the name of the condition in your telephone listing….or google. Bear in mind that most places in it are American ones. I wish you have name the disorder as somebody may have had a positive result for you
Hi, I’m sure there would be some groups possibly on Facebook. I, myself and two of my boys have a inherited genetic disorder and there are a few groups that I am in on Facebook. A couple of them are worldwide which is really good, knowing that there are other people that are going through the same type of things/conditions that myself and my boys have.
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Ellen said
- 03 Nov 2021
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BellaB said
- 16 Oct 2020
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~Loui~ said
- 30 Mar 2020
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Blossom said
- 03 Mar 2020
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mom330666 said
- 24 Feb 2020
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BellaB said
- 21 Feb 2020
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missshasha33 said
- 19 Feb 2020
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mom81879 said
- 17 Feb 2020
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