Hello!

My son is 3, and “severely” speech delayed. He was hearing impaired for 18-20months, and now we have fixed his hearing his language has not increased. He says ‘mum’. He has passed his audiology tests since his surgery in October (8 months ago).

We have had the diagnosis of severely speech delayed, and I have asked about NDIS, from 3 different health care professionals, and been told “he’s too smart in all other areas, he does not qualify” We have been doing Auslan for about a year now, as it’s his only way to communicate and I refuse to deal with the pointing and crying because he can’t speak.

My long winded question is basically this, does anyone have any ideas of how to get onto the NDIS, or any other avenues we can progress to? With speech pathology sessions costing upwards of $200 a session, being on the register would come in handy.


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  • Have a chat to your gp or ring the ndis hotline.


  • Maybe the doctor can write a referral?


  • I think you’ve been given wrong advice, my son has ndis funding for his sensory issues and anxiety. He is most likely gifted as he started kindergarten this year and was doing year 2 work from day 1.
    You need to contact the early childhood coordinator in your area and give them all the details. In my area it’s uniting, where we use to live was northcott.
    I hope you are able to get it sorted soon.


  • We needed a Paediatrician letter and alot of hoop jumping unfortunately with out a diagnosis like being to.tne spectrum it is harder. Our son had GDD but when he got to 7 we needed more then that to stay on NDIS.


  • There are some great services and companies who help people apply for the ndis but I found that if you explain your situation in detail to the ndis rep they generally are quite understanding and help you get what you need. Maybe explain how it impacts his daily life and what that means for him if he cannot get access to the funding.


  • Unfortunately I don’t know the answer but wishing you all the best.


  • Thanks mummas for all your very helpful answers. I have a meeting with the Early intervention for NDIS next month and hopefully that assessment will give me some more answers. I do so appreciate each and every one of your answers. xx


  • NDIS is just another government agency that is hard to navigate. See if there is an advocate for you to get counsel from.


  • My son sees a Speech Pathologist and our doctor gives him a care plan which gives you 5 rebates a year which is a little helpful. Also a friend mentioned to me that you can apply directly to the NDIS to try and get funding.


  • One of my sons was diagnosed with a delayed speech development. The first thing we did was see a GP who referred us to a speech pathologist.
    Speaking from experience, make sure the child likes the speech pathologist and feels comfortable with them, because the first one we saw with my son, while he knew his stuff, my son hated him and wouldn’t cooperate. We ended up taking him to another one where he really progressed well.


  • A good starting point is a GP. There is a criteria that needs to be met.


  • I would think you would need to start with your GP or paediatrician. Or ask someone at an NDIS office.


  • You don’t mention if you have a paediatrician. A good one, may be all you need, to write up a report and guide you through the process and requirements. You are doing a brilliant job advocating for your son.


  • There are some pages on fb and instagram (Lactation.and.language) that could help with games to help with language and speaking


  • Call the NDIS yourself and put in an application for ECEI. He will need to be at least a year behind in two developmental areas (not including behavioural). We are having the same issue now – our early partner that was supposed to help us said they wanted nothing to do with us and actually cancelled our private therapies.


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