7 Answers

I had my thyroid removed 4 years ago, after losing 30kg in 12 months (plus a host of other issues from an over active thyroid). I am still struggling to gain weight. I have the regular blood tests every 3 months and got my last tests back which the doctor said were “weird”. He accused me of not taking my daily Thyroxine….I was gob smacked as it is a daily ritual :( Apparently my brain isn’t registering the additional thyroid hormones but my body is still overactive. I’ve never heard of anything like this and am curious if anyone else has?

Posted by paulah2, 30th November 2015

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  • Time for a new doctor. There is a Facebook page for support for those with thyroid issues and they list doctors across Australia who have been helpful. Unfortunately, I think a lot of GPs are generalists and thyroid issues is an area of speciality. Perhaps seek a second opinion with an endocrinologist who should be able to help you understand your blood test levels and smooth out any irregularities with your medications.

  • oh i hope that you will be ok. i haven’t had experience with this but i know someone who couldn’t lose weight becuase of it.

  • Goodness! You have endured a lot and lost a lot of weight too which has no doubt impacted on your body. Good luck with your testing, anomalies can sometimes turn up and then readings can return to normal.

  • I’m sorry. It must be really frustrating indeed!!

  • The Doctor told me to have further blood tests in 6 weeks (I feel like a freaking pin cushion)!!
    Thank you both for the info – I’ll check out the Facebook page too.

  • Incredible! No, I’ve never heard of this problem before.
    I suffer of hypothyroidism (Hashimoto actually) and I take Thyroxine every day. But I’ve got a problem kind of opposite of yours. My thyroid is not overworking but not working enough. So I’ve got problems losing weight.
    You lost 30 kilos??? That’s a huge amount!!
    How does the doctor want to proceed with you then?

  • search “FFPO Australia” on facebook (for thyroid patients only) It’s a closed group but there are a lot of people there who have done a lot of research and there is bound to be someone there who as a similar experience to you. There are also lists of thyroid friendly doctors in the “files” section along with lots of other info

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