I an sure you and your husband are doing everything possible to care for Charlotte. I think the Carers Allowance is tax free which means you may not have to declare and pay tax on it, not that it is much consolation. Check if she qualifies for NDIS assistance. When you need special equipment for her consider approaching the Lions Club for assistance. Unless their method has changed they order and pay for the equipment as people haven’t done the right thing in the past. I am not sure what the procedure is in getting the details and passing them on. I know one family were lucky to get a special custom make tricycle for their daughter who has severe muscle problems with her legs. Pushing the pedals is helping to strengthen her legs. I don’t know if any of the other Service Clubs would be able to assist you with equipment or not.

See all “The Day We Found Out Our Daughter Has Wolf-Hirschhorn Syndrome Was The Day Our Life Changed Forever” product reviews

Published 5th April 2020


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