Just remember that these people you have been speaking to are not professionals in relation to the ndis so take what they say with a grain of salt.
When my husband was battling termainl cancer I was told that I would not be able to get carers pension from centerlink for him. A Doctor told me this. He was 100% incorrect. They do not know.

Have a chat to your gp or ring the ndis hotline.

Maybe the doctor can write a referral?

I think you’ve been given wrong advice, my son has ndis funding for his sensory issues and anxiety. He is most likely gifted as he started kindergarten this year and was doing year 2 work from day 1.
You need to contact the early childhood coordinator in your area and give them all the details. In my area it’s uniting, where we use to live was northcott.
I hope you are able to get it sorted soon.

We needed a Paediatrician letter and alot of hoop jumping unfortunately with out a diagnosis like being to.tne spectrum it is harder. Our son had GDD but when he got to 7 we needed more then that to stay on NDIS.

There are some great services and companies who help people apply for the ndis but I found that if you explain your situation in detail to the ndis rep they generally are quite understanding and help you get what you need. Maybe explain how it impacts his daily life and what that means for him if he cannot get access to the funding.

Unfortunately I don’t know the answer but wishing you all the best.

Thanks mummas for all your very helpful answers. I have a meeting with the Early intervention for NDIS next month and hopefully that assessment will give me some more answers. I do so appreciate each and every one of your answers. xx

NDIS is just another government agency that is hard to navigate. See if there is an advocate for you to get counsel from.

My son sees a Speech Pathologist and our doctor gives him a care plan which gives you 5 rebates a year which is a little helpful. Also a friend mentioned to me that you can apply directly to the NDIS to try and get funding.

One of my sons was diagnosed with a delayed speech development. The first thing we did was see a GP who referred us to a speech pathologist.
Speaking from experience, make sure the child likes the speech pathologist and feels comfortable with them, because the first one we saw with my son, while he knew his stuff, my son hated him and wouldn’t cooperate. We ended up taking him to another one where he really progressed well.

A good starting point is a GP. There is a criteria that needs to be met.

I would think you would need to start with your GP or paediatrician. Or ask someone at an NDIS office.

You don’t mention if you have a paediatrician. A good one, may be all you need, to write up a report and guide you through the process and requirements. You are doing a brilliant job advocating for your son.

There are some pages on fb and instagram (Lactation.and.language) that could help with games to help with language and speaking

Call the NDIS yourself and put in an application for ECEI. He will need to be at least a year behind in two developmental areas (not including behavioural). We are having the same issue now – our early partner that was supposed to help us said they wanted nothing to do with us and actually cancelled our private therapies.

Keep trying as what you have been told is untrue! A lady I know her daughter (now 6 years old), was diagnosed as selective mute. She is now on NDIS for speech therapy. This is nothing on your little boy.

Get him seen by child development services (should be covered by Medicare, but you need to be referred by paediatrician, which started with referral from GP). Once your son is assessed by them, then you can contact AngliCare and they’ll be the one to guide you through to the path to get NDIS. It’s a pretty lengthy process though. From first time being seen by child development services to finally get NDIS took us about 7 months. My son is just a bit over 2 years old now. I actually don’t think my son’s speech is really severely delayed, but it’s what the report says. They reckon he’s delayed in his fine and gross motor skills and some other areas too. Overall I’m actually not even that worry about him as well as his daycare teachers. I just went along with the experts recommendation basically. So the NDIA reckon because his delays require him a multidisciplinary approach (therapies) hence he’s eligible for NDIS as a part of early prevention for long-term support. If that make sense.

My 1st son has ASD and was severely delayed in speech. We applied for NDIS online with supporting evidence from speech therapy, psychology & paedatrician.

The best way is to get a supporti g letter from a speech therapist, paedtirician and from what I have heard is Maternal Health nurses can do letters as its classed as “early intervention”. You need supporting letters from specialist when you apply for NDIS.

My son had a speech delay, gross motor and fine motor delays, didn’t walk until over 2 years of age. We had multiple different specialists we were seeing and were not offered, nor eligible for NDIS. Because at that age it can’t be proven that it’s all permanent.
NDIS is only for diagnosed permanent life-long conditions and it is extremely difficult to get it.
Unfortunately you won’t be eligible for a few more years at least even if things don’t improve.
You can probably see your child health service and be referred to specialists who are attached to your local hospital though.
A lot of the specialists we saw were through this. Where I live it’s called “population health” but I’ve got no idea what it would be called elsewhere.

Keep advocating for your child, it’s not an easy path to walk – pushing for help for your child and often not being listened to. I’ve done it twice now and still am for my son.