Does anyone here have neurofibromatosis?

Hello!

Is there anyone else on this site/family members who have this genetic condition?

First name

Last name

Email Address You’ll need to check this email to complete your signup.

Password

Confirm Password

- - mom56312 said
  - 01 Jul 2017
    9:25 pm
Yes I have it and it was not discovered till two of my kids were found to have it.. WE have NF1 for short.. For me it explains a lot.. For my kids they have been able to get a lot of early intervention speach, OT, etc .. But its still to be seen how it affects them health wise through their lives as it affects people differently…