Aw how concerning ! Is he diagnosed early and treated promptly ? How is he going now ?

Sounds awful. I’ve never heard of it. I do wonder how you both are these days, have things improved at all?

never heard of it. hope all is well.

Good luck with everything. I’d imagine the Dr or hospital would have information on support groups you can speak to.

there are some good comments here

I can imagine how u cope with that?

Never heard of it before. I am sorry to hear about your man. Hope you find the information you are after.

how terrible for you all, I hope you get support, and that things get better.

If you google there are some internet support groups which might be your best bet for advice and support

Never heard of it, sorry. But hope you find a support network.

No idea but would b horrible

Hope you have managed to find answers that you need.

I’ve never heard of it either

I had never heard of it before

I hope you find a solution Best of Luck

I had to look it up, it sounds terrible! Wishing you all the best.

Sorry, I’ve never heard of this

have not heard ot it but hope you can get help

Good luck and I hope you find the answer

sounds very scary good luck hun x