Son with spina bifeda - Real Mum story on MoM

My middle child was born we found out he had spina bifeda.

2 days later we were taken to children’s hospital and saw the spina bifeda team. At this stage we were advised about the disability, that he may never walk, go to toilet, we had to wait for 10 months for a MRI to get the full diagnosis and form off the disability he had,.

He had mycomslygasol form and tethered cord so at 13 months they operated and disconnected his spinal cord from his lump on his bottom and closed the bottom of his spine up. He also has a butterfly vertebrae. He started walking a week after surgery, he has defied the odds and is nearly 7 and now plays football.

He’s our miracle child.

Posted by mikiajai, 9th April 2014

71 Comments

- - mom81879 said
  - 10 Sep 2015
    5:52 pm
Oh wow, what a wonderful article! So good to read a feel good story

- - mom113055 said
  - 27 Apr 2015
    11:56 am
nice to read stories on this great site

- - mom94125 said
  - 18 Oct 2014
    1:12 pm
that is so incredible to hear

- - rustyblue said
  - 22 Aug 2014
    2:38 pm
Thank you for sharing that – its a tough road when you have a disabled child, but he seems a determined little guy, with an equally determined family – good on you all.

- - neat22 said
  - 10 Aug 2014
    1:07 pm
How beautiful your story is. It’s amazing when we as mums are pregnant have these great visions of our children. Then the miracle is brought to us, a life, a gift and then we learn it might not be what we had envisiaged. But it becomes our journey and we learn what real accomplishments are.

- - mrsdew17 said
  - 03 Aug 2014
    9:10 pm
Wow. Such a powerful story in such a few short words. Thank you for sharing it.

- - ozstarlett said
  - 31 Jul 2014
    10:48 am
What a wonderful joy that he gets to experience the miracle of walking. I am sure that he will be able to enjoy being a child and be an inspiration for other parents of kids with disabilities and the kids themselves everywhere.

- - wendy_adhofer said
  - 30 Jul 2014
    1:50 am
I’m glad everything worked out, having children can be very scary; sounds like you have been brave. Wishing you many happy moments.

- - deborah_osborne said
  - 29 Jul 2014
    8:04 am
So So wonderful how ur child has improved ,never give up ! You have the strength to support him ,which provided him the strength to fight &win his medical conditions.

- - deborah_osborne said
  - 14 Jul 2014
    7:49 am
Been hard time for u all .The strength ur child shows is amazing.Tell me anything is possible .

- - anne_casandra said
  - 13 Jul 2014
    2:59 pm
God bless your family

- - mouse said
  - 08 Jul 2014
    2:38 pm
a miracle child indeed, god love him and you also

- - Cynthea Jenke said
  - 06 Jul 2014
    11:03 pm
Wow how great is that hes walking. My daughter has a rare syndrome and we were told she could be in a wheel chair by 10 years of age as it attacks her muscles. Shes now 18 and still walking. Shes been in cast both legs, had acupuncture, two head operations, growth retardation, one side of her body is shorter than the other, lots of physio, podiatry work, laser treatment. We keep going i dont know where we find the energy. Lots of stretches, and massages. My daughter is in the australian squad and state squad for lawn bowls. Go kidsssss.

- - mom57506 said
  - 05 Jul 2014
    8:51 pm
That is superim glad he beat the odds

- - WiTchEEZ said
  - 01 Jul 2014
    11:21 pm
Restores a bit of faith at a time when I really could use some, So pleased for your family that this worked out for your son xxx

- - zoedono said
  - 27 Jun 2014
    5:47 pm
Stories about children beating the odds is always heart warming. Thank you for sharing with us.

- - cairnsbliss said
  - 25 Jun 2014
    12:58 pm
well done Mum and well done to your son. See what love can acheive! You are a miracle as well as your son. I am so happy to hear he is doing well.

- - deborah_osborne said
  - 24 Jun 2014
    5:37 am
Wonderful outcome ,Kids with these awful diseases ,so sad ,good to hear a good outcome.

- - 191joannes said
  - 19 Jun 2014
    11:06 pm
oh so happy it all turned out ok you had me in tears very moving xxx

- - mom57758 said
  - 11 Jun 2014
    2:53 pm
Thanks for sharing your story glad to hear he is playing footy.