I have decided to share the story of our special son Noah. He is 5 years old and has retinal disease (the retina is the light sensing organ at the back of the eye) which means he has low vision along with some other developmental issues. Less than 2% of the population have his level of vision.
What does this mean for children like Noah? Although their disability is not visible, life can be quite difficult and scary when you cannot see clearly or if you cannot see much at all. Sounds, textures and smells are sensed often more acutely and even a trip to a supermarket can be tiring and overwhelming.
Educational needs are also different with special reading aides such as lights, print magnifiers, orirentation and mobility training needing to be shown to kids like Noah so they can have an inclusive and whole education.
Noah and children like Noah often cope well and therefore it is often forgotten how hard everyday activities we take for granted are not so easy to do. So maybe next time when you see a child or an adult who may be walking slowly, acting a bit odd or more obviously with a cane or guide dog give them some respect.
What I do know is that while my son will never drive a car, may one day ride a bike (he can’t quite yet) and will have to have help to become independent I would never change him for the world.
Posted by calinkal, 28th October 2013