Son with spina bifeda

71 Comment

My middle child was born we found out he had spina bifeda.

2 days later we were taken to children’s hospital and saw the spina bifeda team. At this stage we were advised about the disability, that he may never walk, go to toilet, we had to wait for 10 months for a MRI to get the full diagnosis and form off the disability he had,.

He had mycomslygasol form and tethered cord so at 13 months they operated and disconnected his spinal cord from his lump on his bottom and closed the bottom of his spine up. He also has a butterfly vertebrae. He started walking a week after surgery, he has defied the odds and is nearly 7 and now plays football.

He’s our miracle child.

Posted by mikiajai, 9th April 2014

71 Comments

- - coppin85 said
  - 11 May 2014
    7:10 pm
wow he sounds like a strong boy and I’m glad to hear he’s doing so well!

- - mom57756 said
  - 11 May 2014
    12:53 pm
Can’t imagine the rollercoaster of emotions you and your family went through. I bet it’s all worth it every time you see him smile.

- - mums-info said
  - 08 May 2014
    9:01 pm
That’s great I’m glad he can walk and play foot ball must be a huge relief he can do all the ‘normal’ stuff……
My son also has a T6 butterfly vertabre and scoliosis
- mikiajai replied
  
  13 May 2014 , 9:41 pm
  Did they tell you he couldn’t play certain sports, how is he going now, I would love to hear your story.
- - mikiajai said
  - 06 May 2014
    10:08 pm
Thanks he is such a miracle to us I love reading all your wonderful replies thanks

- - della said
  - 06 May 2014
    9:01 pm
That is inspirational to here he walking and playing footy,keep moving forward with love and strength .

- - nida saeed said
  - 06 May 2014
    9:49 am
Love happy stories. Give him a hug from me please

- - meros said
  - 05 May 2014
    10:57 pm
Sure sounds like a miracle. Thanks you for sharing this information with us.

- - mikiajai said
  - 04 May 2014
    12:25 am
Thanks for all the beautiful comments, he is definetly our miracle child, he amazes us everyday and talk about having a hugs nans most, he remembers things from when he was so little xx this photo is today getting trainers award at footy.

- - virginiasheard said
  - 03 May 2014
    10:57 am
that is a wonderful story . goodluck with everything. godbless you all

- - tamandimmy said
  - 03 May 2014
    9:36 am
Keep going, you know him best. Never give up

- - mariel said
  - 03 May 2014
    12:04 am
I believe miracle always happen so touching strory

- - kellyewinsor said
  - 02 May 2014
    10:31 pm
Thats fantastic that he’s doing so well i bet you are so proud of him as you should be.

- - Mellypenny said
  - 02 May 2014
    10:30 pm
Oh wow what a beautiful story! Thankyou for sharing!

- - BellaB said
  - 02 May 2014
    5:28 pm
It is so difficult to have a child with a disability, but it’s such a joy to see them triumph over low expectations. Congratulations!

- - linda197 said
  - 02 May 2014
    12:04 pm
Thank you for sharing your story what an amazing little boy you have

- - ashyhatton said
  - 15 Apr 2014
    9:39 pm
Wow! Thats beautiful! What an amazing little miracle boy you have 🙂
- mikiajai replied
  
  20 Apr 2014 , 9:48 pm
  He is our own little miracle thanks
- - shazzbot said
  - 14 Apr 2014
    8:11 am
Your story moved me, you certainly do have a miracle child.
- mikiajai replied
  
  19 Apr 2014 , 10:16 pm
  Thanks so much, he surprises us everyday, it was so hard to have more children but we have 3 beautiful children.
- - damish70 said
  - 13 Apr 2014
    8:11 pm
Miracles do happen & he’s living proof of it! My niece was born with Spina Bifida too 33yrs ago & was operated on within hours of her birth. She walks unaided, has had a child & lives a normal life. Enjoy your little man!
- mikiajai replied
  
  19 Apr 2014 , 10:18 pm
  Thanks I also have a girlfriend who has it and had gone to have 2 healthy children, she makes me more determined to let him be a normal child.
- - blockmount said
  - 11 Apr 2014
    9:04 pm
Your story just melts my heart so beautiful. Just goes to show if you believe and never give up miracles can happen. Very happy for your family.
- mikiajai replied
  
  20 Apr 2014 , 9:49 pm
  Thanks so much
- - amyy said
  - 11 Apr 2014
    8:23 pm
That is incredible news! What a miracle and true fighter! So happy to hear great news like this!
- mikiajai replied
  
  20 Apr 2014 , 9:50 pm
  Love sharing as you never know when people need to see success stories.