So things have been really looking up for my little guy. You may have read a previous story about him, with him having meningococcal, leukemia twice, meningitis twice and a stem cell transplant. He is my real life hero, he really is. But I wonder how much of that has taken a toll on me and my body and health. I have recently been diagnosed with Fibromyalgia and Chronic Fatigue Syndrome. It is so debilitating. I recently went to a Rheumatology specialist appointment, that I have been waiting for, for nearly two years. Then she told me I had Fibro, and I started bawling. Anyone would have thought she had told me I had a terminal illness. But no. She told me I had Fibromyalgia. I had this idea in my head, that I would go in, she would look at my test results, and she would tell me whats wrong and how we were going to fix it. But no. She very abruptly told me this is what it is. You will never get rid of it; you will learn to manage the pain instead. That wasn’t in the script. I dont want to be one of those parents whose children look after them. I am here to be a parent, a carer. Not the other way round. I absolutely detest the thought. I want to be out jogging 8 kms a day like I was 2 years ago. Aaah, 2 years ago seems like a lifetime ago. But like usual I just need to buck up, and get over my shit. No-one else is going to give a shit. They all have their own to deal with.

Posted by Missie, 28th October 2014

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  • nice story for read


  • good story


  • it is a nice story


  • Yep, I live this too, to some extent. It’s really hard. Sympathy.

    • Thanks, BellaB. Yes, you’re right, it is hard. Very hard. But like a lot of other Mums out there (and Dads too), I find it extremely hard to ask for help. I just smile and act like everything is ok(-ish) in front of everyone, then go home and cry and hurt.


  • Wow I don’t know what to say, you and your little boy have been through a lot , you have every right to feel what your feeling

    • Thanks Kajoy, I guess I really just came here to vent and get it all out to people who dont know me or judge me. Thankyou x


  • Sorry to read but I hope you find a sliver lining best of luck


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