Parents of special needs children - please help ...

12 Comments

Hi, I am a mother of a child with special needs … sadly my child cannot do much, they are unable to crawl, sit up on own, stand, walk or talk (communicate). Of late, my child has mastered “spitting” and spits a lot =( Not sure if it’s for fun, entertainment, trying to tell us something, express feelings etc … however it’s getting worse … due to the developmental delay along with not able to communicate or know if they understand us … we asked for help from a behavioural specialist – her advice was to “ignore” the child when they spat, or turn the child (or ourselves) away … this isn’t really a great solution, it’s not working …It’s come to the point when we go out or have family/friends over – we are constantly trying to stop the spitting and we can tell guests are not impressed with it (child may spit at their face – kind of their way of expressing themselves or if spitting around people, the “spray” can even reach them) Plus the sound of the spitting is also not very nice.

Please, any other parents who have been through something similar – please any advice, suggestions or support would be appreciated – we are so lost as to what to do – it breaks our hearts to have people not want to go near our child or get cranky or say they are “naughty/bad” , we are also sometimes put in difficult situations and can feel awkward/embarrassed of this behaviour … sadly my child does not understand and I don’t know what to do – the only thing we can think of at the moment is social gatherings may soon have to be without us, or one of us parents and the child =(

Thank you

Posted by dreamer1495, 3rd January 2014

12 Comments

- - mom134803 said
  - 11 Sep 2016
    1:06 pm
I go to a mums group where mums and their disabled children hang out together. It’s a place where you can find acceptance, respect, understanding and support. Maybe look around and try to find something like that in your area. It can be a life-line !

- - dannsbuild said
  - 06 Sep 2015
    11:41 pm
Yes! They don’t deserve to be your friend at all!

- - mom113055 said
  - 30 Apr 2015
    2:37 pm
nice story for read

- - dee lindsay said
  - 13 Mar 2015
    3:16 pm
My step mother was a teacher for many many years at different primary schools, she even was my student teacher when I was at primary school before she met my dad.

During her many years she started teaching children with various stages of Autism, which was wonderful to see that they were integrated with the other children, it was about time. When our son was born, we noticed something different with him, there could be something wrong, She found that if they jump on trampoline’s it helps jerk their brain. It helped our son, he started talking properly. instead of ooshes, he started saying shoes, and similar words. It is amazing what a trampoline can do for children. I now have said to my son to get a trampoline for his daughter who is a bit slow with her words. His eldest and youngest are ok, but the middle one has trouble talking still, at 3 years of age, we have trouble understanding her.

all the best for you, I will be thinking of you. xx dee

- - coppin85 said
  - 31 May 2014
    1:39 am
keep trying and remember that they (friends) are adults and they should understand

- - meimei said
  - 24 May 2014
    8:51 pm
I think you did the best things as you can for your kids and your friends should be understand your situation.

- - fatheroffaprincess said
  - 31 Mar 2014
    8:02 pm
you dont need them.

- - yyon4699 said
  - 30 Mar 2014
    5:51 pm
They don’t deserve to be your friend if they cannot forgive a baby who spits. Shame on them!

- - jodie80 said
  - 18 Mar 2014
    6:14 pm
i take my hat off to you , you sound like your doing a great job

- - della said
  - 07 Jan 2014
    11:34 pm
If there your reel friends then they will understand and if it is strangers just explain the situation and if they are not understanding then ignore them,the most important thing is to keep on with your life .Because your doing the best you can and are amazing parents

- - nicoleandchris2013 said
  - 04 Jan 2014
    6:43 pm
I also have a child with special needs he has autism and I guess all you can really do is just tell them about your child’s special needs and if they are really nice and are your friends they will understand
- mom57522 replied
  
  10 Jan 2015 , 8:43 am
  That’s true, you’d think they’d understand.