My middle child was born we found out he had spina bifeda.
2 days later we were taken to children’s hospital and saw the spina bifeda team. At this stage we were advised about the disability, that he may never walk, go to toilet, we had to wait for 10 months for a MRI to get the full diagnosis and form off the disability he had,.
He had mycomslygasol form and tethered cord so at 13 months they operated and disconnected his spinal cord from his lump on his bottom and closed the bottom of his spine up. He also has a butterfly vertebrae. He started walking a week after surgery, he has defied the odds and is nearly 7 and now plays football.
He’s our miracle child.
Posted by mikiajai, 9th April 2014