Hello!

15 Comments

I just wanted to share my story with the experience that I have gone through with my son so if it ever happens to anyone else you may know what is going on.
My son and I were driving back from the country in open country road, I was pregnant at the time around nearly due to give birth and my son was in grade 5 at the time. He turned to me and asked why peoples tongue go numb and I responded with maybe they have eaten something you know like the lollies that can sometimes make this happen. Well he turned away for a second looked back at me and was what I thought was struggling to breath, his mouth Jaw had lodged sideways and he was unable to speak. I slammed on the breaks and ran onto the road and I had 2 cars pull up eventually, they thought I had gone into labour but I explained what had happened and grabbed my car from the car he was still struggling to answer as his words were not coming out ok. He managed to say “I ok mum”. The very nice people escorted me to the nearest town doctor where he told me that I think your son has had a stroke and if you are travelling to Melbourne. you may as well keep driving and go directly to hospital. It was the worst trip for me home as I was scared something else would happen. So to cut a long story short months later he finally got diagnosed as long waiting lists to apply for the testing but he has complex partial epilepsy which affects the facial region and can look like someone has had a stroke. This was something new to me as I really only thought there was one type, but it can come in many different ways. I thought I would share my story so others are aware as well.


Posted anonymously, 6th May 2014


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  • Thank you so much for telling your story. I have heard of 12 year olds having a stroke . It seems there is no particular age for this to occur. I hope all is well with your son now and in the future.

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  • How incredibly terrifying for you, glad he is ok and you got the answers you needed.

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  • Oh my God. That sounds horrific. Am glad you have a diagnosis. Wishing you all the best for your future.

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  • That’s terrifying!
    At least you know what it is, and sharing awareness

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  • that is scary! how stressful to you! at least he knows what it is now

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  • that would have to be the single most horrifying experience. i can not even imagine.

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  • Wow that would have been scary for you, hope you have gotten the help he needs and that he has not given you too many more scares

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  • So frightening for you – I’m astonished the doctor sent you on and didn’t call an ambulance or something.

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  • Thank you for your great reminder. Wishes all the best for your family.

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  • oh my god that would have been so scary but I am glad you now know what it is

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  • ohhhh hun, what a horrible experience to have gone through, wishing you all the best with this

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  • Thanks for sharing your story. That would have been a scary trip indeed. I know first hand what those trips can be like, trying to keep your cool and drive. My son when he was very small had his first asthma attack, due to woodfire smoke, whilst we were having a BBQ and picnic in a semi remote area. It was quite a severe asthma attack and all I remember from that day was the sheer panic and focusing on getting to the hospital. It was so moving to read that your son managed to get out to you that he was ok. I knew there were different types but had not heard of this one. It is terrible to hear of such long waiting lists. You would have been beside yourself with worry during that time. Several years ago I worked out in the community and there was a child that used to have what is termed as absent seizures, whereby a person may look as though they are staring into space, sometimes with other symptoms. I thank you for sharing your story.

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  • How scary – I would be too beside myself to drive! Thank you for sharing and trying to raise awareness.

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  • OMG sounds really scary, glad you found out what it was and thanks for sharing :)

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  • Oh my God, how terrifying! My first thought was ‘stroke’ too. I never knew that there were different types of epilepsy either. Thanks for sharing.

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