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I am in my mid 40’s and am exhausted all the time. I had all the tests and nothing. Dizzy spells written off to my long term (family history of) high blood pressure. Thanks to a vigilant GP, I had loads of tests and was found to have a hole in my heart. Alas, it is long and skinny, so operating is not an option, as mine can only be fixed by open heart surgery. I have a dead area in my brain from stroke, thankfully it was an area I don’t need (LOL). My workmates, when I am being dipsy, say I am thinking with the dead area of my brain!! I am on a few drugs, and have been ok for about 4 months now. Last episode involved ambulance called to work (very embarrassing) and a few hours in emergency resuss ward… The nurses are goddesses btw! Anyway, after grieving for my lost energy, I am left with the question, do I let my illness define me, or do I live, and if anything happens so be it? What are your thoughts? Me, I think I will be respectful of my limitations, but I am going to live everyday like it is my last, and just give thanks for every day.


Posted by coastalkaryn, 8th September 2015


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  • Well said… I’m glad they found out what was wrong…. But illness is hard, especially adjusting to a diagnosis, and limitations it may bring…. living each moment is all we can do and all we should – that is all each of us have, so that is a nice leveling field!

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  • i think that you should keep positive! know your limits but don’t be defined by them! think outside of the box!

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  • Thanks for sharing your story :) Good on you for acknowledging your illness and for choosing to live every day like it is your last. I do understand illness and agree with you – make it count within your capacity. Wishing you the best. x :)

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  • I agree, accept your limitations and work around them so you can enjoy life

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