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11 Comments

www.thepetitionsite.com/831/455/587/moyamoya-disease-awareness-world-moyamoya-day-may-6th/?taf_id=10226250&cid=fb_na

Hello Mums,

Firstly I’d like to,say I hope you are all having a happy Australia Day & spending time with your loved ones as I am. The real reason however, for this post is there is a link above, which is very personal for me & I would be ever so grateful if you could spare a few seconds & sign this petition. This is a rare disease called Moyamoya disease which affects approximately 1 in 1 million people, my man being one of them. This is a very rare disease which not only affects adults, but children as well, even more so. Moya moya means ” puff of smoke” in japanese and is where the main arteries in the brain gradually taper off causing strokes and eventually dementia or death. The only treatment is revascularisation and that isn’t a cure. This is a very scary time indeed as Jason keeps having TIA’s however, all we can do is wait. I really want to get the word out as the more we are informed the quicker they may find a cure, if there is one. Also, perhaps you or someone you know is fighting this too, I would be more than grateful to hear any stories. Thank you so very much & keep enjoying this sunny Australia Day…

Sandi xo


Posted by sanjipanj, 26th January 2014


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  • stories are great

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  • Thoughts are with you this Australia Day.

    Reply

  • my thoughts and prayers are with you, I hope they find a cure asap

    Reply

  • Sandi – I’ve signed your petition

    Reply

  • signed and shared – positive thoughts to you

    Reply

  • this is such a heartfelt article and i hope you and your family are staying as well as possible. peace, love and mungbeans

    Reply

  • good luck on it all :)

    Reply

  • Signed and shared. Hope is not too late and all the best to you and your family and will keep you all in prayers.

    Reply

  • Horrible disease poor lil ones that have it life can be cruel

    Reply

  • So many conditions we are ignorant of until the light is shone onto it. I have signed the petition and shared it on facebook. Good luck.

    Reply

  • Good luck with your petition ,you just educated me ,I had not heard of it before you mentioned it

    Reply

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