The story of 13 year old girl who just wants to come home to die.
Phelicity has spent much of her short life in a hospital gown, undergoing multiple operations for a congenital heart defect and related condition that depletes her stocks of protein. For the past two months, she has been in intensive care in the United States, after her parents Ben and Veronica took her abroad for an emergency life-saving operation.
Against all hopes, her treatment was unsuccessful. Now, Phelicity hopes to come home again. “She wants to swim in the pool with her sisters and have a meal with her family and friends,” Mr Sneesby says. “She says ‘I want to go home. I don’t want to be in hospital.’
“She knows she is probably coming home to die. For you and I, home is where we go every day. For someone like Phelicity, it is a special treat. As a kid who has spent most of her life in hospitals, home is a special place.”
The cost of getting her home to Ballina in NSW from the United States on a special medical flight is $US150,000 ($A212,000). Her family can’t afford the fare and hope to raise the funds online. More than $100,000 had been donated via flyherhome.com by Saturday.
“Despite everything, she is one of the most positive people I have ever met,” her dad says.
“She said to her mum the other day ‘I want a block of chocolate’ and when she said no, she smiled and said: ‘Mum, I’m not getting any better, just give me the chocolate.’
“She has hope that she is going to live forever. To her, this is a small chapter – it isn’t the end.”
We hope her wish comes true! Our thoughts are with Phelicity and her family.
February is Sweetheart Day, held annually on Valentine’s Day, to raise much-needed funds to provide support for Aussie kids with childhood heart disease as well as fund vital medical research. So show your heart this February 14th to join the fight against childhood heart disease!
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Image via SMHFull story here.