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 The story of 13 year old girl who just wants to come home to die.

The Sydney Morning Herald shares the story of 13 year old Phelicity Sneesby who suffers with a congenital heart defect.

Phelicity has spent much of her short life in a hospital gown, undergoing multiple operations for a congenital heart defect and related condition that depletes her stocks of protein. For the past two months, she has been in intensive care in the United States, after her parents Ben and Veronica took her abroad for an emergency life-saving operation.

Against all hopes, her treatment was unsuccessful. Now, Phelicity hopes to come home again. “She wants to swim in the pool with her sisters and have a meal with her family and friends,” Mr Sneesby says. “She says ‘I want to go home. I don’t want to be in hospital.’

“She knows she is probably coming home to die. For you and I, home is where we go every day. For someone like Phelicity, it is a special treat. As a kid who has spent most of her life in hospitals, home is a special place.”

The cost of getting her home to Ballina in NSW from the United States on a special medical flight is $US150,000 ($A212,000). Her family can’t afford the fare and hope to raise the funds online. More than $100,000 had been donated via flyherhome.com by Saturday.

“Despite everything, she is one of the most positive people I have ever met,” her dad says.

“She said to her mum the other day ‘I want a block of chocolate’ and when she said no, she smiled and said: ‘Mum, I’m not getting any better, just give me the chocolate.’

“She has hope that she is going to live forever. To her, this is a small chapter – it isn’t the end.”

We hope her wish comes true! Our thoughts are with Phelicity and her family.

February is Sweetheart Day, held annually on Valentine’s Day, to raise much-needed funds to provide support for Aussie kids with childhood heart disease as well as fund vital medical research. So show your heart this February 14th to join the fight against childhood heart disease!

Join the fight against childhood heart disease!
www.sweetheartday.org.au

Share your comments below.

Image via SMHFull story here.

  • Things like this shouldn’t happen. Where is karma when innocent and inspiring young people suffer such a life. I hope she gets home and performs miracles. Beautiful soul.

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  • i really hope she gets home.

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  • Bless her sweet little heart. I hope she gets her wish

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  • I’ve read the update before reading this article. So glad to see the campaign was a huge success!!

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  • I’ve been keenly watching the tally at https://www.gofundme.com/phelicitysneesby. I am so thrilled that they have reached their target and then some. It is amazing what can be achieved when so many strangers across the globe donate even just small amounts. I hope now that with the money they can bring her home although I read that there is still a lot to be done to get her stable enough to fly. My thoughts are with her.


    • yeah they have acheived a lot. hopefully this girl will feel better at home

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  • Lke bx

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  • I wish her all the best with getting home and being able to spend some happy times with family and friends.

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  • Poor little darling..she and her family will be in my prayers. Hope she gets her wish.

    Reply

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