What a tragic disease to have to deal with, watching your daughter age before get time. You seem to have a coping mechanism in place. Try not to worry about the kids, they don’t understand. And the adults are being sympathetic, even though it’s unwanted. I wish you all the best xxx

i hadn’t heard about this before. you are raising awareness just by doing this post.

Sorry that you are having to encounter such insensitive people. Can only hope that is not the case in the near future. Thank you for sharing your story and all the best to yourself and your family.

great to read this story

How terribly sad. I’d never heard of this condition before. Unfortunately people can be so unkind.

As a mum with a angel herself my heart breaks for you. People can be so cruel and mean to those that are a bit different. Sending you massive hugs and no everyone is mean. Treasure each moment and try not to let others pull you down

There are some nasty people Im this world. I feel for you and your beautiful girl you guys are going through enough you don’t need this from the outside world. I wish there was something I could do for you both

Thanks for writing this, You\re right, as parents we have to teach our children to be accepting of everyone, its the same with racist attitudes. We need to teach and model the right behavoirs so the next generation can be better people that the last, in each generation. We need to develop as humans and be more humane towards each other. I wish you and your daughter a lovely life together.

People can be so horrible, you and your daughter can walk around with you’re heads high, and don’t worry about the mean people we all come across them