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Would like to share our story and reinforce to everyone that although you have and are dealing with issues at home which you think are minimal compared to sickness and suffering of others the old saying “there is someone else worse off” is true but does not mean you dismiss that what is happening in your life to you is not important! over period of 3-4 years my hubby was rushed and hospitalised with heart troubles, my stepdad diagnosed and chemo for leukaemia then our 9 yr old son suddenly developed epilepsy. Hubby is back to health with controlled medications, stepdad won a battle with chemo so far and our son is more controlled with medication. A trying few years to say the least …but just after my stepdad ( poppa ) started treatment our son developed anxiety sickness we later he wanted to visit his poppa in hospital and was normal happy behaviour attitude hugs etc but everytime we would leave he would feel nausea & vomit on way home. at first we put it down to gastro bug a few times but then when we noticed pattern and it even got to point if we spoke of poppa in his earshot he would have same symptoms. we dealt with counselling and cancer council then once poppa was past chemo and on the mend out of hospital our son’s issues slowly disappeared. When his sudden epilepsy developed which were seizures on waking or late at night sleeping the anxiety came back with full force. my poor boy was to scared to sleep for fear of having a seizure – for months he would only sleep if I was with him touching him so lots of sleepless nights for both him & I – eventually he progressed to be comfortable enough to sleep a whole night on a mattress on floor in our room. then we bought him a double bed for his room and he felt safe to sleep in that sometimes. we have had tremendous support from The Epilepsy Centre in form of counselling a kids camp- where our son met other kids with epilepsy help dramatically for him to lose his feeling he was a freak and see other kids have epilepsy & take medication everyday like him. They also fundraised and got him a seizure mat which he has had for a few weeks and you notice it makes him feel safer by the extra night he sleeps right through and not asking me to sleep with him every night. To others he is a normal 10 year old boy and I am so grateful & proud of how he is slowly overcoming his fear / anxiety it has been an especially long 16 months since diagnosis. Hubby helped as much as he could but our son only wanted me and I was struggling mentally and sleep deprived and kept telling myself pull yourself together there are so many people much worse situations…but eventually I worked out I need to cry, vent, ask for help, feel sorry for my son, us and IT IS OK – because this is our life at the moment and no matter how minor in the big scheme of things it is major issue for us we are dealing through!


Posted by cbusch, 23rd April 2014


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  • So much for you to be dealing with, and pleased you have some support.

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  • We can never describe what someone is going through as better or worse than someone else’s situation. It is impossible! We can only imagine what it would be like to walk in another person’s shoes, and imagination is not fact.

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  • sometimes a vent can be the best therapy needed

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  • You have certainly had a lot to deal with.

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  • I totally agree with you. My son was assessed as having some anxiety when he did the Connors scale test in relation to ADHD. The dr who recently treated his allergies noted that when he was anxious about having the skin prick test done he developed an asthma wheeze (he is asthmatic). It is a very real thing in children and a tricky one to tackle.

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  • Everyone has bumps in the road, some more major than others, but we all need friends to talk to, a shoulder to cry on and support, sometimes from professionals.

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  • So sorry to hear of your struggle and your son’t troubles. Anxiety is very hard to deal with especially in children.

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  • I’m so glad to read of all the support you’ve received. Being a Mum is the hardest job in the world.

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  • there’s always people that might be worse off but it doesn’t make what you are going through any easier,and what you were going through was a very,very difficult time so i say to you well done for realising that you needed to ask for help and vent,every situation is different but so is every person,some might be extra strong and manage, others need extra help there’s nothing wrong with that,no persons grief and problems are insignificant.

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  • In so glad they have an Epilepsy centre that involves counselling and a camp and other children with the same illness. It sounds like it helped tremendously. You have done a great job to get through this extremely tough period. Wish you all the best of luck.

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  • you are so right it does not matter how big or small your problems are you are aloud to cry get mad ect. I hope thing improve more for you as well and thank you for putting your story out there for us all to read and let people know it’s ok to feel how you feel

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  • This is a great reminder. A reminder that no matter what you’re going through – whether someone else thinks it’s small compared to what they’re going through – to the person actually dealing with the situation it’s a major thing. It’s affecting their life and we all need to remember that we shouldn’t be putting ourselves and our families second because we think what we’re going through isn’t important or as big as what someone else is going through.

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  • Anxiety in kids is a very real problem and it can be hard to differentiate between anxiety and nerves. You are right in that we have to consider our own situation too and those of our kids. I hope you son, and the other members of your family, feel much better and improve their health prospects soon.

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