Would like to share our story and reinforce to everyone that although you have and are dealing with issues at home which you think are minimal compared to sickness and suffering of others the old saying “there is someone else worse off” is true but does not mean you dismiss that what is happening in your life to you is not important! over period of 3-4 years my hubby was rushed and hospitalised with heart troubles, my stepdad diagnosed and chemo for leukaemia then our 9 yr old son suddenly developed epilepsy. Hubby is back to health with controlled medications, stepdad won a battle with chemo so far and our son is more controlled with medication. A trying few years to say the least …but just after my stepdad ( poppa ) started treatment our son developed anxiety sickness we later he wanted to visit his poppa in hospital and was normal happy behaviour attitude hugs etc but everytime we would leave he would feel nausea & vomit on way home. at first we put it down to gastro bug a few times but then when we noticed pattern and it even got to point if we spoke of poppa in his earshot he would have same symptoms. we dealt with counselling and cancer council then once poppa was past chemo and on the mend out of hospital our son’s issues slowly disappeared. When his sudden epilepsy developed which were seizures on waking or late at night sleeping the anxiety came back with full force. my poor boy was to scared to sleep for fear of having a seizure – for months he would only sleep if I was with him touching him so lots of sleepless nights for both him & I – eventually he progressed to be comfortable enough to sleep a whole night on a mattress on floor in our room. then we bought him a double bed for his room and he felt safe to sleep in that sometimes. we have had tremendous support from The Epilepsy Centre in form of counselling a kids camp- where our son met other kids with epilepsy help dramatically for him to lose his feeling he was a freak and see other kids have epilepsy & take medication everyday like him. They also fundraised and got him a seizure mat which he has had for a few weeks and you notice it makes him feel safer by the extra night he sleeps right through and not asking me to sleep with him every night. To others he is a normal 10 year old boy and I am so grateful & proud of how he is slowly overcoming his fear / anxiety it has been an especially long 16 months since diagnosis. Hubby helped as much as he could but our son only wanted me and I was struggling mentally and sleep deprived and kept telling myself pull yourself together there are so many people much worse situations…but eventually I worked out I need to cry, vent, ask for help, feel sorry for my son, us and IT IS OK – because this is our life at the moment and no matter how minor in the big scheme of things it is major issue for us we are dealing through!
Posted by cbusch, 23rd April 2014