I posted a story a few months back regarding living with a moyamoya sufferer, well after all these endless weeks of waiting Jase finally has a date being the 29th a May. Initially it was scheduled for the week prior however, there was an urgent case, we were told this could happen.

This has been the news we have been wanting but now that it’s actually booked in it seems even more scary, it’s hit me in the face, us I should say! I can’t imagine what Jase is going through except frightened out of his wits, understandable to say the least.

He’s family will be staying for a couple of weeks, being his parents which I have mixed emotions about. I love them dearly however, we live in a small 2 bedroom unit, I like my space & hope I don’t feel railroaded. I completely understand that these are his parents whom I love dearly & would never stand in the way, his dad has seen & knows to much which makes me feel rather vulnerable but I’m sure I’ll appreciate their support & company.

This time next week my man will be admitted to hospital, operated on the following day. I plan to visit my old work, have lunch with a moyamoya survivor & perhaps a visit to the
tattooist but plan to keep busy as it could be an all day op.

This is my story for now & will be sure to keep you posted.

I just,wanted to share this story, follow up in fact

Posted by sanjipanj, 22nd May 2014

Post your story
  • nice to read stories on this great site


  • i like reading these stories it s fun


  • Thanks for the update. Best of luck.


  • My best wishes for you and family :)


  • We’re thinking of you Sandi and sending positive thoughts and well wishes for you both :)


  • Hope this happened as a result of fervent prayers. We need to pray my dear and seek the face of GOD in everything we do or wish to come to pass. Thank God all the same.


  • I have my fingers crossed for you hun that there will be no more rescheduling and that everything goes to plan, best wishes to you all


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