Hello!

By

14 Comments

Today is World Haemophilia Day, which aims to ensure better diagnosis and access to care for those with the rare blood disorder.

According to Haemophilia Foundation Australia (HFA), there are more than 2,800 Australians with the inherited condition, which impairs the body’s ability to control blood clotting. Without the proper treatment, Haemophilia can be life threatening.

Below are some fast facts from Changing Possibilities in Haemophilia®:

image1

For more information about World Haemophilia Day, click here.

Real Story about Haemophilia

One of our Mouths of Mums members has shared her story about the diagnosis of her son with Haemophilia.

To read her story, and show your support, click here.

Main image courtesy of Shutterstock.com
  • We learnt about it because of a friend who has a different type of bleeding problem which can affect your liver. If he gets just a small scratch it will sometimes bleed more than other people do. Surgery is a drama. If he has a tooth removed at all, they have to watch for bleeding for an hour or more, not just a few minutes. Prior to having the tooth removed the Dr. gave him a course of Vitamin K injections. They improved the problem a little, but it was still high risk. He once had minor day surgery to remove a lump in his knee which turned out to be a stitch which hadn’t dissolved. he stayed on the table for awhile afterwards and they checking it. After 1 1/2 hours they told him he could go home. Whe he stood up it bled everywhere. He had to go back on the operating table while they put pressure on it until It stopped bleeding them re-bandaged it and let him go home. He had to keep it raised for 24 hours. He was advised not to drink alcohol as it would thin his blood more.
    He was also told if he ever gets pains in the region of his liver to seek medical attention immediately. Apparently the problem is reasonably common.

    Reply

  • What a scarey thing to have! I don’t no anyone personally that suffers from this, but I know it would be simply dreadful to have

    Reply

  • That’s interesting! Thanks for sharing this!

    Reply

  • I can’t say i was aware of this condition. Thanks for opening my eyes.

    Reply

  • Thanks for your information on haemophilia, very helpful.

    Reply

  • Wow I wasn’t really aware of Hemophilia. The info pic helps present how serious this condition is for some people. Thanks for raising awareness

    Reply

  • Bryce Courtney wrote a wonderful book called April fools day about his sons life with this condition. I think it helped in creating an awareness for many AUstralians

    Reply

  • It’s a terrible disease, hopefully gene therapy will become advanced enough in the near future to treat haemophilia.

    Reply

  • This is a great informative read!

    Reply

  • it is really great to read

    Reply

  • good to read

    Reply

  • I never really understood the impact of this somewhat debilitating and life threatening illness until I read April Fools Day by Bryce Courtenay. Makes you appreciative of the healthy life you have.


    • Whoops, I made a similar comment too. It’s a fantastic book!!

    Reply

  • Thank you for making us aware of this day.

    Reply

Post a comment
Like Facebook page

LIKE MoM on Facebook

Please enter your comment below
Would you like to include a photo?
No picture uploaded yet.
Please wait to see your image preview here before hitting the submit button.
Your MoM account


Lost your password?

Enter your email and a password below to post your comment and join MoM:

You May Like

Loading…

Looks like this may be blocked by you browser or content filtering.

↥ Back to top

Thanks For Your Star Rating!

Would you like to add a written rating or just a star rating?

Write A Rating Just A Star Rating
Join