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NSW mum is pleading for access to medical cannabis on behalf of her eight-year-old daughter, who she says comes a step closer to death every day.

Yvonne Cooper of Lake Heights, south of Wollongong, says she is “beside herself” and was driven to start a Change.org petition “out of desperation” after another night of thinking she was about to lose her little girl Sienna, shares 9 Honey.

Over 50,000 people have thrown their support behind the campaign.

“I am left with no options,” Ms Cooper wrote. “Sienna suffers up to 100 epileptic seizures per day, each one life-threatening…We’ve been through 5 specialist doctors unable to help her. Right now she’s on 8 different medications.”

Every fit Sienna endures, Ms Cooper says, is damaging the child’s brain and organs.

“I have had to watch her cognitive ability decline, going from an IQ of 90-100 to a range from 41-52. She has been diagnosed with a severe intellectual disability,” Ms Cooper wrote.

“Now every seizure is a step closer to death. Right now we are being forced to sit back and watch our baby girl dying in front of us and not a single doctor in NSW can help us. This is cruel and devastating.”

The change.org page reads,

“I don’t want to break the law, but I don’t want to bury my eight-year-old child. I am left with no options – my 8 year old daughter Sienna suffers up to 100 epileptic seizures per day, each one life-threatening.

I’m writing this out of desperation. Last night I spent the evening watching my little girl gasping for air, unable to breath, another night of thinking I was about to lose her.

We’ve been through 5 specialist doctors unable to help her. Right now she’s on 8 different medications and still experiencing over 100 seizures per day. I’m beside myself.

Doctors say they’ve tried everything – the only option left is medicinal cannabis or her the seizures will continue to cause irreparable damage to her brain and organs. But despite it being legalised last year, red tape is leaving Sienna’s doctors unable to fast track her lifesaving access to medicinal cannabis. She’s left with the only option of joining a long list of kids waiting to get onto clinical trials.

I have had to watch her cognitive ability decline, going from an IQ of 90-100 to a range from 41-52. She has been diagnosed with a severe intellectual disability.

Now every seizure is a step closer to death. Right now we are being forced to sit back and watch our baby girl dying in front of us and not a single doctor in NSW can help us. This is cruel and devastating.

We need immediate amnesty to give our little girl a quality of life and a long lasting life. She has dreams too, please help her live to follow them.”

Support the change here. 

Share your comments below.

Image via Change.org

  • is there an update? hopefully this child could be ok

    Reply

  • One would hope it might work – not all seizures are stopped with this, but every chance should be given.

    Reply

  • How awful knowing there was sonething out there that could save your child’s life but it was near impossible to get. I hope they get some soon

    Reply

  • Sienna should be one of the first on the trial to see if she can be helped in any way and at least give her some chance of a better quality of life. I wonder which state will start using it first.

    Reply

  • This is so sad. I too don’t understand what the hold up is with allowing the use of cannabis for medical reasons.

    Reply

  • This is heartbreaking indeed !!
    Don’t understand why they don’t allow the medical use of cannabis in this country !

    Reply

  • How heart breaking! We use heroine for medical purposes- why can’t we use cannabis?

    Reply

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