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Jordan Talley shares with Love What Matters her heartbreaking experience after watching her baby girl fade away – ‘Her eyes were dull and sunken in, her skin was sagging’

“After my attempts to breastfeed my first daughter were crushed by the stress of her NICU stay, I was absolutely determined to breastfeed my second daughter. I had a relatively normal pregnancy this time around, with the exception of gestational diabetes and a little bit of high blood pressure towards the end.

“I had always heard that babies born to gestational diabetic mothers were born huge, so I was expecting a chunk. (I had diabetes with my first daughter as well, but she had restricted growth and stopped growing around 34 weeks– so she came out a tiny 5 pounds 1 once.)

“My main concern when she was born was her blood sugar levels, because that is why my first had a NICU stay. I think I asked the nurse 5 times if they had checked her blood sugar yet.
“We spent the first two hours of her life smiling, taking photos, and breastfeeding on and off…her latch seemed good. Her tiny lips looked to me as if they were as wide as they could go, and her mouth was moving, so I assumed that she was eating well. I had never exclusively breastfed, so I wasn’t entirely sure of what to expect.

“We met with the lactation consultant before we were discharged from the hospital because I was having nipple soreness. She told me that it was probably because Lucy had a shallow latch, so she showed me some holds and tips to help her get a deeper latch.

“When we left the hospital, Lucy weighed 6 pounds, 1 ounce. Weight loss is normal in the first couple of days, so I didn’t think much of it. I followed all the rules in the book when we got home from the hospital. I nursed on-demand, which, for Lucy, was pretty often. I ate oatmeal with flax seed.
I drank blue Gatorade. I ate lactation cookies and brownies. I was prepared to nail this breastfeeding thing.

“She always fell asleep while she ate. I thought it was sweet and assumed she was milk drunk. But for some reason, she seemed to pull away from her latch and scream as if there wasn’t anything coming out. I was starting to get nervous that my body wasn’t making enough milk for her. I told myself that my body was literally made to feed this sweet baby, and knew deep down that it wasn’t a supply issue.
“We went for a one week check up to her pediatrician. Her weight had dropped more…. She was down to 5 pounds, 12 ounces. He said she looked perfect, but that he wanted to see her gain more weight. I went home and nursed and nursed and nursed. I was still having pain every time she latched to eat. She was still fussy — as if my breasts were empty bottles and I was forcing her to suck on air.

“The next week rolled around and she had gained! Up to 6 pounds, 1 ounce… but not at birth weight yet. I asked her doctor to check and see if she had a tongue or lip tie, because I had read that ties can interfere with breastfeeding — thus interfering with weight gain. He peeked in her mouth and said that she did not have any ties. The doctor told me that he wanted to see her again next week, and that if she hadn’t gained enough by her one month checkup, then we’d have to ‘do something else.’ I knew exactly what that meant. I left the office and cried.
“Two weeks later, she had her one-month appointment. My sweet girl had lost her chubby cheeks. Her eyes were dull and sunken in, and I was STILL having pain every time she nursed. I stripped her down to a dry diaper and walked her to the scale. The numbers seemed to take forever to stop scrolling… but when they did, they read 6 pounds 7 ounces. My heart sunk. Still not at birth weight. I fought against thoughts of failure as we walked back to the exam room. My throat hurt from holding back tears that tried so desperately to escape. I sat down, holding Lucy in her pink and white blanket. I quickly scrolled through my phone to find my firstborn daughter’s one-month weight… she had gone from 5 pounds, 1 ounce at birth, to 7 pounds, 8 ounces by her one-month appointment. On formula.
I choked back the tears as I gazed down at my sweet Lucy, her skin just sagging off of her. Why was I failing?
“The doctor came in and examined Lucy. He said she looked fine, but that my milk probably didn’t have enough calories in it for what she needed. It felt like someone had taken a knife to my chest when he said that. He might as well have said, ‘your milk isn’t good enough for her.’ I knew in my head that my body makes exactly the kind of milk that she needs, because I had researched. I knew that breastmilk is a living substance that changes day to day, or even feeding to feeding in order to meet baby’s needs. He opened the cabinet in his office and there were dozens of cans and types of formula. The first one in the cabinet was the high calorie formula that my daughter had in the NICU… I figured he would go for that. Instead he pulled a little yellow can out and told me to offer her 2 ounces after each time she nurses. I asked if we could fortify my pumped breast milk instead of doing straight formula, and he said maybe eventually we could ‘work up to that’…. Work up to that? How bad of shape was my baby in, exactly?
“I left the doctor feeling completely defeated. I knew in my head that my supply was fine… but couldn’t figure out why she wasn’t gaining proper weight.
“I headed to the grocery store and nursed Lucy before going in. When she was finished, I snapped a picture of her ‘milk drunk’ expression and posted in a Facebook group explaining our situation and seeking support. One woman commented, ‘Just in the photo you’ve shared, I can see that her hand is in a closed fist. That is typically not ‘full and content’ but actually fatigue from inefficient nursing. They just tire themselves out.’

“I reluctantly reached out to a lactation consultant named Amanda, a boss mama who is not only a lactation consultant, but a doula through her service named Grateful Moms Doula Service. We texted back and forth for a few hours and she told me that she could see me that night or the next morning. She asked if I’d be open to supplementing Lucy with donor breast milk. I asked her if it was free, and she explained that it was and that she would really love to help us, because she saw a picture of Lucy and was concerned for her. It made me nervous that someone who sees lots of babies for a living was concerned for my baby.

“Within minutes of meeting Lucy, she had diagnosed a tongue tie and a lip tie. She watched Lucy eat, and even commented that it ‘definitely wasn’t a supply issue.’ I felt immediate relief. Amanda’s presence, reassurance, and bags of donor breast milk brought me such a peace. Amanda made sure that I had enough donor milk to feed Lucy every two hours. By 9:00 that evening, I could already see a difference. We weighed her with our home scale, just out of curiosity…7 pounds… She had gained 9 ounces the first day. For the first time in her life, Lucy was content.
“Amanda referred me to someone who performed tongue tie and lip tie revisions. With Amanda’s referral and the urgency of Lucy’s situation, we were able to have the revisions performed the next day.
Immediately after the procedure, I got to nurse Lucy.  As soon as she latched, I could feel a difference. It didn’t hurt anymore. Everyone had always said that ‘breastfeeding shouldn’t hurt,’ so I thought maybe I was just a wimp.”

Mum Jordan added earlier today, “If anyone is curious, Lucy is now over 8 lbs and will be 6 weeks old tomorrow!! She is so sweet and perfect in every way!”
What is tongue-tie? via Breastfeeding assoc
Tongue-tie occurs when the thin membrane under the baby’s tongue (called the lingual frenulum) restricts the movement of the tongue. In some cases the tongue is not free or mobile enough for the baby to attach properly to the breast. Tongue-tie occurs in 4-11% of newborns and is more common in males.
Some babies with tongue-tie are able to attach to the breast and suck well. However, many have breastfeeding problems, such as nipple damage, poor milk transfer and low weight gains in the baby, and possibly blocked ducts or mastitis due to ineffective milk removal.
There are many signs that a baby is having problems with breastfeeding and they may be related to tongue-tie:
  • nipple pain and damage
  • the nipple looks flattened after breastfeeding
  • you can see a compression/stripe mark on the nipple at the end of a breastfeed
  • the baby fails to gain weight well
Diagnosis of tongue-tie
Australian Breastfeeding Association counsellors are not medically trained and cannot assess whether or not a baby has a tongue-tie.
If you are concerned that your baby has a tongue-tie that is causing breastfeeding problems, you may wish to see a lactation consultant who can carry out a full assessment including assessing breastfeeding and checking your baby’s mouth. A lactation consultant can discuss the assessment findings with you and your options.
Share your comments below
  • Poor bub, she really does look unwell and underfed. It really shouldn’t have taken so long to find such an obvious issue

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  • Thanks for sharing your story, happy that she is going okay now

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  • the paed should have been able to see it!

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  • Thanks for sharing this story – I would also be changing the doctor to someone more capable.

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  • That’s so bad of the doctor for not being able to pick up on this- he actually had a look! I think these days they are too quick to snap their fingers and say ‘formula’! I think it’s just lazy doctoring as they just want to whip you in and out of their surgery.

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  • Thank you for sharing your story, glad she is ok now.

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  • Poor baby she is so cute glad they found out what the problem was and she’s doing well now

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  • How frustrating the tongue- and lip tie weren’t recognized by the doctor, even when his opinion was asked. I suppose it’s just not the area of expertise of a doctor. Good on this mum not to follows the doctors advice of feeding the bottle, but to find this good breastfeeding consultant / doula !

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  • My nipples were absolutely destroyed and I just thought it was normal being a first time mum. But turns out my Bub has a small lip tie. They didn’t want to do anything about it tho as apparently it wasn’t bad enough

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  • Ours had a minor lip tie instead of tongue tie. I know exactly how that felt early on. So glad she’s doing well now

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  • My baby couldn’t latch but I was lucky enough to have an amazing midwife who picked up on it in the first few hours. I feel for this poor Mum and the anxiety she must have gone through.

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  • My story is somewhat similar to yours, only my son had a tongue and lip tie, I had recurrent thrush AND low supply issues. It took about 12 weeks and the help of an experienced Lactation Consultant to sort us out and get us to the point of being able to exclusively breastfeed without pain. Good on you Mumma for persisting and trusting your instincts!

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  • This is such a good example of a mother who followed her instinct. Well done for advocating for your baby despite drs telling you there was nothing wrong.

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