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Parents who say they would have aborted their daughter if they had known she had a severe brain defect are suing the medical professionals.

Regan Hooker and Wayne Ball’s daughter Aria, who is now two, was diagnosed with Aicardi Syndrome months after she was born.

The debilitating condition means Aria may never walk or talk and she also suffers from stunted growth, reports Daily Mail.

Aria’s parents, who are from New Zealand now live on the Gold Coast, say they would have terminated the pregnancy if they had known about the brain defect before she was born.

They are now suing sonographer Kim Andrew and radiologist Greg Duncombe, of Queensland Maternal Fetal Medicine in Southport, for $2.5million in damages.

Ms Hooker, 37, and Mr Ball, 41, say the two medical professionals should have spotted the defect and warned them about it during a 19-week ultrasound in September 2013.

Court documents filed in Brisbane by the parents also claim obstetrician Penelope Isherwood failed to warn them of the condition.

The parents also claim that none of them suggested Ms Ball have a repeat ultrasound after 22 weeks or a foetal MRI at 26 weeks.

They say that they would have aborted Aria if they had known she would be born with the disability, which also leaves her with impaired vision, hearing loss and developmental issues.

Aicardi Syndrome can be detected during pregnancy – as early as a 12-week scan – but Aria was not diagnosed with the condition until she was five months old, despite numerous tests after she was born.

Ms Andrews, Dr Duncombe, Dr Isherwood and Queensland Maternal Fetal Medicine are yet to file a response to the claim in court.

Because the couple are originally from New Zealand, Aria is also considered a Kiwi and therefore her parents are not entitled to help paying for the girl’s treatment.

Mr Ball is an interstate truck driver, leaving Ms Hooker to spend most of her time caring for Aria.

She also still needs to work to help pay the bills – which are not helped by Aria’s need for therapy.

‘I would love to be able to stay at home and care for Aria but it’s just not possible with so many therapies and treatments to pay for,’ Ms Hooker wrote on a GoFundMe page. 

Aria’s condition means she only has use of about 50 per cent of the nerve which connects both sides of her brain.

It has left her with hearing impairment, scoliosis of the spine and a throat condition which leaves her ‘sounding like an old man when she sleeps’.

While Aria suffers from a long list of ailments, doctors have told her parents that she was lucky to have escaped any seizures in the first year of her life as most girls suffering from Aicardi can suffer from up to 30 a day.

Her parents could move back to New Zealand and receive financial help from the government there, but believe the good weather in Australia is helping the little girl’s immune system.

‘Aria has a really low immune system so she would be sick even more than what she is now,’ Ms Hooker previously told Daily Mail Australia.

 

Share your comments below.

Image via Gofundme

  • Surely there is some locations in NZ with similar climate to that needed for their little girl. Hopefully they would receive some assistances with costs over there but would the child be allowed in NZ given the fact that she will be a burden to the medical system over there. Some children aren’t allowed into Aust. for that reason even if their parents originally come from Aust. Appeals often have to be lodged. Hopefully the girl’s Dad could get a job in NZ. Maybe there is the risk of that being an issue too.

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  • I so dislike the way the people of this country are following the American way and suing for anything and everything they can. Doctors are not all-knowing and all-seeing gods and are known to make genuine mistakes at time. I do feel sorry for the child and for the parents, but suing will not alter the facts.

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  • Difficult to know how I would act in such a situation. But if was possible to detect this brain defect, I think the doctors should have done a better job.

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  • I know that when I had a scan at 20 weeks I was given a result based on probability, not a 100% guarantee. I don’t know whether this condition is something that was not spotted, or could not be spotted. I guess it’s something only medical professionals could answer.

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  • This is a tough call and I’m not sure what I would do if I were in their shoes. All I know is everything in life happens for a reason and we need to trust that God knows what’s best for us. She is such a beautiful little girl xxx

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  • I find it hard to understand the attitude of these parents. Sometimes a disability goes undetected and doesn’t become clear until after birth. Now they sue the doctoc’s for $2.5 million because it is their fault it went undetected, really ?? As if a healthy child is something you can claim and have a right to have…and the disabled child is unworthy to live !!
    And mum can’t stay at home and care for Aria because it’s just not possible with so many therapies and treatments to pay for, yet the parents are unwilling to move back to New Zealand and get help from the government because it’s too cold ? I’m sure there are possibilities to live there under their circumstances.

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  • Poor little girl. That would be hard . not sure suing will help anyone

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  • Thia angers me for so many reasons but best kept to myself

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