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Mum shares her tips to help parents going through a tough time.

Australian travel blogger, Jessica Stein, gave birth to her baby girl, Rumi, after a complicated pregnancy.

Six months after her birth their chronically ill little girl is still in and out of hospital undergoing urgent surgeries – the latest for intestinal malrotation.

Ms Stein  took to her Instagram account on Sunday to address everything that has been happening and share with her followers what to do if they know of someone going through a tough time, shared Daily Mail.

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‘Every day is a fight, but yesterday was the worst of our lives. Ru had urgent surgery for her intestinal malrotation a few days ago,’ the doting mother wrote.

A post shared by Jessica Stein (@tuulavintage) on

‘There are so many parts of life that we won’t ever be able to understand unless we experience them ourselves, but we can try. I never knew the amount of love, hope, isolation, pain and suffering possible until caring and fighting for a chronically ill bub every day.’

Ms Stein said that for anyone out there going through a tough time but ‘doesn’t know what to do or say’ and ‘thinks it is best to stay away until tough times pass’ – ‘please don’t’.

‘If you ask “what can I do” and they don’t give clear direction, do what you can anyway,’ she continued.

‘Leave groceries on their doorstep. Freeze meals. Bring coffee. Turn up for a hug then leave. Watch their kids while they take a shower or a nap.

Please don’t stop texting even if they don’t reply, they probably don’t have words to explain it.

‘Ask if they need help paying rent, bills or with Centrelink forms as you know they haven’t been able to work in a year.’

Ms Stein suggested asking whether they need help getting to the hospital or asking if they need to talk or ‘sit together in silence.

‘Don’t tell them everything will be okay if they “just think positive sunshine and rainbows”. Please don’t assume we are on the same journey as other new parents. Please don’t ask “what’s wrong with her” just to know, and do nothing,’

Ms Stein said. ‘Please don’t assume anyone has enough support around them as this is not always the case, and can be a difficult thing to admit. I have been begging for help and understanding from Doctors, family and friends this past year and try to focus on those who have remained and not feel the hurt of who is not here.

‘At the end of all the s**t days these things go out the window. Because it’s not about me and Pat, it’s our beautiful girl that doesn’t deserve any of this.’

 

Every day is a fight, but yesterday was the worst of our lives. Ru had urgent surgery for her intestinal malrotarion a few days ago. After a horrible day when the morphine increased and she was finally resting during her first Immunoglobulin Replacement Therapy (plasma transfusions) her stats dropped. No parent should know this feeling. I don’t know how we made it through. But she did. Today the fight starts over again. There are so many parts of life that we won’t ever be able to understand unless we experience them ourselves, but we can try. I never knew the amount of love, hope, isolation, pain and suffering possible until caring and fighting for a chronically ill bub every day. To anyone out there that knows someone going through a tough time but doesn’t know what to do or say so thinks it is best to stay away until tough times pass, please don’t. If you ask “what can I do” and they don’t give clear direction, do what you can anyway. Leave groceries on their doorstep. Freeze meals. Bring coffee. Turn up for a hug then leave. Watch their kids while they take a shower or a nap. Please don’t stop texting even if they don’t reply, they probably don’t have words to explain it. Ask if they need help paying rent, bills or with Centrelink forms as you know they haven’t been able to work in a year. Ask if they need help getting to hospital or ED each day. Ask them if they want to talk, or sit together in silence. Don’t tell them everything will be okay if they “just think positive sunshine and rainbows”. Please don’t assume we are on the same journey as other new parents. Please don’t ask “what’s wrong with her” just to know, and do nothing. Please don’t assume anyone has enough support around them as this is not always the case, and can be a difficult thing to admit. I have been begging for help and understanding from Doctors, family and friends this past year and try to focus on those who have remained and not feel the hurt of who is not here. At the end of all the shit days these things go out the window. Because it’s not about me and Pat, it’s our beautiful girl that doesn’t deserve any of this.

 

A post shared by Jessica Stein (@tuulavintage) on

Since sharing her story the popular blogger has been inundated with messages of support.

Sending Jessica and little Rumi lots of love and strength.

Share your comments below.

  • Do hope all turns out well for you Jessica and for little Rumi. Angels sent to watch over you.

    Reply

  • I can’t imagine how hard it must be to be a parent if a seriously ill child. I thank my lucky stars to have never had to go through this

    Reply

  • Great message ! Sending much love, praying healing over little Rumi and hope the parents receive all the strenghth, support and help they need. Xx

    Reply

  • Any parent that goes through anything like this is a superhero!

    Reply

  • I hope this family get lots if support. What a brave parent to be able to voice her feelings in such a clear, concise way.

    Reply

  • It can be very difficult when you have little support.

    Reply

  • It must be such a big challenge, day after day. She wrote such a beautiful message!! :-)

    Reply

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