October 26, 2017


Millions of women around the world are estimated to be living with depressive symptoms after stillbirth.

There are at least 2.6 million stillbirths a year across the world. More than 2,000 families each year suffer the loss of a stillborn baby in Australia, equating to six stillborn babies every day.

The death of an unborn baby is a tragedy that deeply affects families, health systems and wider society. Parents continue to grieve for their baby for years. Their functioning and sense of self can be profoundly changed.

Read more: More than 20,000 stillbirths worldwide are avoidable

Here are five ways we can help parents cope with the tragedy of stillbirth.

1. Acknowledge parents’ loss

Taboos and myths about stillbirth make it a topic many family, friends and communities feel ill-equipped to deal with and are unprepared to talk about. But avoiding the topic can magnify the trauma.

Because others are uncomfortable with the topic, many parents feel unable to talk about their loss. And well-intentioned comments, such as “it was meant to be”, “these things happen” and “you can always have another baby”, minimise parents’ loss and may only leave parents feeling more isolated in their grief.

Read more: Death and families – when ‘normal’ grief can last a lifetime

Listening to parents and acknowledging their stillborn baby as a member of their family, and acknowledging their grief, is vital to improve care and reduce the impacts of this devastating loss.

2. Offer ongoing support to parents

Throughout the world, 4.2 million women are estimated to be living with depressive symptoms after stillbirth. Many suffer in silence due to the taboo surrounding stillbirth.

Respectful and supportive care is essential in hospital. But it’s often when parents arrive home without their baby that the reality hits and the long and often lonely journey of grieving begins.

When parents arrive home without their baby the reality hits and the long and often lonely journey of grieving begins.
from www.shutterstock.com

Yet less than half of parents in high-income countries receive a follow-up visit or phone call from their hospital. And only around half receive information about who to contact for support after they leave hospital. These figures are even lower for parents in developing regions.

3. Raise public awareness

Until fairly recently, stillbirth has been a neglected issue, largely absent from the global health agenda. We need to improve public awareness of stillbirth to make sure our social communities and workplaces are equipped to provide the kind of support and recognition parents need.

Women and their partners should also be equipped with knowledge about how to reduce their risk of having a stillborn child.

Hearing the voices of bereaved parents in the public will help break down taboos. For public health campaigns to be effective, target populations need to be aware of the health threat as a first step, followed by messages that move the target audiences to action.

Read more: Passed away, kicked the bucket, pushing up daisies – the many ways we don’t talk about death

One of the most successful public health campaigns are the back to sleep campaigns to reduce sudden infant death syndrome (SIDS). The simple, universally targeted messages reached new and receptive parents.

If campaigns are not universally agreed to by all stakeholders, a plethora of competing campaigns may arise. This will confuse the target population, diminishing the campaigns’ value or, worse, they may cause harm.

Among the most successful public health campaigns are the back to sleep campaigns addressing SIDS.

Organisations such as Stillbirth Foundation Australia, Red Nose, Sands, Still Aware and Bears of Hope have a key role to play in supporting parents and raising public awareness. They are collaborating with the Centre of Research Excellence in Stillbirth to develop a unified campaign.

4. Investigate each stillbirth

A critical analysis of every baby’s death can identify contributing factors to help explain the event and prevent future deaths. Such investigations can not only determine the cause of death, but can also unearth systems issues such as a failure to implement evidence-based clinical practice guidelines.

Substandard care plays a role in 20-30% of stillbirths. These cases often show the need to improve detection of women at increased risk during pregnancy.

Read more: Better care and communication can cut stillbirth rates and avoid unnecessary trauma

New Zealand and the UK have national systems to ensure comprehensive review of every stillbirth and neonatal death. Australia’s federal government, through the NHMRC, has funded the Centre of Research Excellence in Stillbirth, to reduce the stillbirth rate and improve care after stillbirth for affected families, including in subsequent pregnancies. This is a step in the right direction.

The Perinatal Society of Australia and New Zealand in partnership with the stillbirth CRE sets out detailed recommendations for investigation and audit of these deaths, but the guidelines are yet to be fully implemented across Australia. Many stillbirths are not fully evaluated as to causes and contributing factors.

Training of health-care professionals in this area has begun, and the stillbirth research centre will work with maternity hospitals to expand this training.

5. Give parents answers

Parents want to know why their baby died. Finding a cause of stillbirth, and the factors that led to that cause, helps parents begin to make sense of their loss.

Most parents will conceive again, and understanding what caused their baby’s death means having a better idea of the likelihood of the cause recurring in future pregnancies.

Specific interventions, such as low-dose aspirin, early scheduled birth, or treatment for anxiety and depression, may reduce the risk of recurrence and improve psychological outcomes.

In high-income countries, around 30% of stillbirths are classified as “unexplained”, though many of these deaths are not comprehensively investigated. By increasing the proportion of stillbirths that are appropriately investigated and improving diagnostic techniques, it may be possible to halve this figure.

Read more: Why we don’t know what causes most birth defects

Problems with the structure and function of the placenta are often linked to stillbirth.

However, many stillbirths occur unexpectedly in an otherwise healthy mother and baby, and remain unexplained after a full investigation. So, research is needed to better understand the mechanisms for these unexplained stillbirths.

Victoria Bowring, general manager of Stillbirth Foundation Australia, contributed to this article.

The ConversationIf you are a parent needing support, visit: Bears of Hope, SANDS, or Red Nose

Lifeline 13 11 14

Vicki Flenady, Professor, Mater Research Institute; Director, Centre of Research Excellence in Stillbirth, The University of Queensland; Aleena Wojcieszek, Research Associate, Centre of Research Excellence in Stillbirth, Mater Research Institute, The University of Queensland; David Ellwood, Professor of Obstetrics & Gynaecology, Griffith University; Fran Boyle, Lead, Care after Stillbirth Program, Centre of Research Excellence in Stillbirth, The University of Queensland; Jonathan Morris, Professor of Obstetrics and Gynaecology and Director, Kolling Institute of Medical Research Obstetrics, Gynaecology and Neonatology, Northern Clinical School, University of Sydney, and Philippa Middleton, Associate Professor, South Australian Health & Medical Research Institute

This article was originally published on The Conversation. Read the original article.

Find out what grieving parents wish people knew about miscarriage and pregnancy loss HERE.

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  • Thanks for these tips, we recently had a mum in our mother’s group who lost her second baby and we are all a bit at a loss as to what to say to her.


  • A friend of ours knew early during through labour that her baby was going to be stillborn. I think that would be worse knowing that you were going through labour with no happy ending. not only are you depressed at the loss of your baby, you also have the change of hormonal pattern that causes depression at least at some stage after birth.


  • People being embarrassed or uncomfortable talking about my son was one of the worst things – and a decade later, it still hurts.


  • It is very hard and painful situation and time as well when someone go through such things.


  • I would think it is the same rules as any loss. Just say I’m so sorry.


  • I cannot imagine how difficult it must be to deliver a stillborn baby. Personally I would have to turn to my faith for consolation. A good article.


  • Well written article. Such a hard and difficult path to tread.


  • We didn’t suffer a still birth, but had 3 miscarriages before our first born daughter. It was tough at the time and when I got pregnant with my daughter I was still on anti-depressants.


  • I am amazed at anyone who can come back from losing a child. It’s got to feel the hardest loss to deal with. I would be at a loss as to how to help someone who had been through this, sad to say


  • My heart really goes out to families who have to deal with this xx


  • I can’t even imagine how hard and painful it must be to have a stillbirth. :-(


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