Perth mother who has shared her son’s battle against cancer has admitted she wants him to die so he no longer has to live in pain.
Update 13 June 2017
Carrie Bickmore, 36, has penned a heartfelt tribute to Bede who sadly lost his battle with brain cancer.
In her Stellar column, she shared the her life changing meeting with the Darch family and four-year-old Bede and from Perth, Western Australia.
Carrie said she first met Bede and his family at their home when he was three-years-old and saw first hand the confronting side of caring for a terminally ill child as his parents, Issy and Roy, did.
“He was being fed intravenously at home, he was on 14 different drugs, and spent most of his day in a high level of discomfort.
Watching Bede’s mum, Issy, and dad, Roy, was a confronting crash course in caring for a terminally ill child.
The truth is I want my son to die, I want peace for him
“Issy was cautious about talking to the cameras, scarred from the reaction to a bravely honest blog post she wrote a few weeks earlier where she poured out her heart: The truth is I want my son to die. He is tired. I want peace for him, rest. Issy deserved support. Instead, she was met with misunderstanding and criticism.”
Bede passed away in May this year and his life left an indelible mark on Carrie.
‘I was forever changed by meeting Bede and his awe-inspiring family, and I truly believe their strength will save lives in the future,’ she said.
Carrie has been a driving force in raising awareness and funding for brain cancer research after her late husband lost his battle in 2010.
She has also set up Carries Beanies 4 Brain Cancer to help raise funds for research.
Previously on this story….
Isabella and Roy Darch’s son Bede was diagnosed with a form of aggressive terminal brain cancer when he was just 16 weeks old. Now three, he has survived a gruelling chemotherapy.
In a blog post Isabella said Bede had been given just six months to live after tests showed the cancer was progressing.
Cut to the chase doc, she says. “How long?”
“Well lets look at the scan first”
“I just need to know”
“6 months. Unless the cancer spontaneously stops growing I think you have around another 6 months with Bede.”
“My heart is raw. Because the truth is I want my son to die. I’m tired. He is tired. I want peace for him, rest. But I instantly hate myself because I know then that is all there will be. He will have no more growth, no more moments tenderly reaching out to his brother, laying next to his sister. He wont squawk away at his dad anymore, he won’t let me kiss him in the way only I can.
He will just be gone. That is not enough for my special light filled boy. Life is hard but death seems worse.”
“All I want for Bede is happiness. I grieve that we don’t all get that.
I am angry that we feel so alone.”
“My heart bleeds and I grieve. I am tired. My bones and muscles and every tendon and ligament ache.”
Friends have started a gofundme page to support Bede in having the best quality of life for whatever time he has left.
We wish them all the strength and love to help them through this horrible battle.
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