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Mum shares sons heartbreaking battle with cystic fibrosis.

Reggie Bird, 44, has spoken about her nine-year-old son Lucas battle with cystic fibrosis.

The mother-of-two, who won Big Brother in 2003, revealed that the nine-year-old recently told her he ‘didn’t want to live’ with the disorder, shares Daily Mail.

Clinic Day for Lucas #lungfunctiontest #cysticfibrosis #weneedacure #fucf

A post shared by Regina Sorensen (@reggiesorensen) on

Speaking during an emotional podcast for WHO magazine, she said: ‘It’s mentally draining.’

‘At the moment he’s saying, “Mummy, I don’t want to live. I don’t want to live with cystic fibrosis, I don’t want to be here”.’

‘A little nine-year-old saying they don’t want to live… it’s not good,’ she added.

Cystic fibrosis is a genetic disorder where sufferers develop ‘excessively thick and sticky mucus within the lungs, airways and the digestive system’.

With no cure for the condition available yet, Reggie takes her son to physiotherapy every day for treatment.

Share your comments below

  • it must be so hard for Lucas and his family to hear his words. I hope he manages to find joy and happiness.

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  • I can understand why this boy who is suffering so much with his incurable disease and spends most of his life at a hospital feels the way he does. I doubt he has ever known what it is like to feel healthy. It must be breaking his parents’ hearts not being help him have a “normal” life at all.
    His parents most likely don’t get the types of support they so desperately need. Parents in such cases often suffer health problems themselves as they forget to look after themselves, often not getting enough sleep as well as other problems.

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  • I hope they can find a cure for this illness soon. It would be heartbreaking to hear your child say they don’t want to live anymore. I wish him all the best and hope he is feeling better soon.

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  • Wow, poor little thing :'( we don’t realise how good we have it. I hope they can find a cure someday soon.

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  • Just so sad for this little fella, and the entire family. They need support. He needs support and love and a community that understands his situation, and that can help provide some help, relief, assistance, hope, positivity….

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  • How heartbreaking. Poor little fella. So many diseases we need cures for. CF is such a cruel disease.

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  • Poor darling, must feel so bad that he doesn’t want to live any more. I really feel for the parents also.

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  • This is heartbreaking. The poor mite feeling so sad that he wants to die :( . She has her own health issues too from memory. This is one disease that we really need to get behind to fund research.

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  • Can understand the poor little one’s thought patterns. Even adults when they are so ill like this don’t want to live any more. Heartbreaking for the mother, though or any one else who has to deal with these words.

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  • Aw bless, heartbreaking to her such words out the mouth of your child. It’s a nasty disease indeed.

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  • Poor kid. It’s such a hard disease to manage and live with.

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  • Oh the poor thing. I can only imagine the amount of tests and stuff he had to go through all the time

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  • Absolutely devastating for the little boy and his parents.

    Reply

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